{"id":4220,"date":"2025-06-27T14:44:04","date_gmt":"2025-06-27T11:44:04","guid":{"rendered":"https:\/\/pharmaworlddergi.com\/?p=4220"},"modified":"2025-07-01T12:03:45","modified_gmt":"2025-07-01T09:03:45","slug":"nutricia-turkiyeden-kalitsal-metabolik-hastaliklarla-mucadelede-her-emek-hayat-demek-projesi","status":"publish","type":"post","link":"https:\/\/pharmaworlddergi.com\/?p=4220","title":{"rendered":"Nutricia T\u00fcrkiye\u2019den, Kal\u0131tsal Metabolik Hastal\u0131klarla M\u00fccadelede \u2018Her Emek Hayat Demek\u2019 Projesi\u2026"},"content":{"rendered":"\n

Nutricia T\u00fcrkiye, kal\u0131tsal metabolik hastal\u0131klara dair fark\u0131ndal\u0131k olu\u015fturmak ve bu hastal\u0131klarla ya\u015fayan bireyleri desteklemek amac\u0131yla \u2018Her Emek Hayat Demek\u2019 projesini hayata ge\u00e7iriyor. Bu proje kapsam\u0131nda erken te\u015fhis ve tedavi planlama, beslenme dan\u0131\u015fmanl\u0131\u011f\u0131 ve bilin\u00e7lendirme \u00e7al\u0131\u015fmalar\u0131 ile kal\u0131tsal metabolik hastal\u0131\u011f\u0131 olan bireylerin hem sa\u011fl\u0131kl\u0131 geli\u015fimlerine katk\u0131 sa\u011flamak hem de sosyal ya\u015famlar\u0131nda fark yaratmak hedefleniyor.<\/strong><\/p>\n\n\n

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Nutricia T\u00fcrkiye, insan\u0131 merkeze alan yakla\u015f\u0131m\u0131yla, toplum sa\u011fl\u0131\u011f\u0131na katk\u0131 sa\u011flama hedefini s\u00fcrd\u00fcr\u00fcyor. Ba\u015fta Fenilketon\u00fcri (PKU) olmak \u00fczere di\u011fer kal\u0131tsal metabolik hastal\u0131klarla ya\u015fayan bireylerin ya\u015famlar\u0131nda s\u00fcrd\u00fcr\u00fclebilir de\u011fer yaratmak amac\u0131yla hayata ge\u00e7irilen \u2018Her Emek Hayat Demek\u2019<\/strong> projesi kapsam\u0131nda, erken te\u015fhis, tedavi planlama, beslenme dan\u0131\u015fmanl\u0131\u011f\u0131 ve bilin\u00e7lendirme \u00e7al\u0131\u015fmalar\u0131n\u0131 6 \u015eubat Kahramanmara\u015f depremlerinden etkilenen b\u00f6lgeyi \u00f6nceliklendirerek ba\u015flat\u0131yor.<\/p>\n\n\n\n

T\u00fcrkiye\u2019de kal\u0131tsal metabolik hastal\u0131k ile do\u011fan bebek say\u0131s\u0131 d\u00fcnyaya k\u0131yasla \u00e7ok daha fazla. Aralar\u0131nda en yayg\u0131n te\u015fhis alan Fenilketon\u00fcri (PKU) hastal\u0131\u011f\u0131n\u0131n, d\u00fcnyada g\u00f6r\u00fclme s\u0131kl\u0131\u011f\u0131 10 bin ile 25 bin bebekte bir iken bu oran T\u00fcrkiye\u2019de 4 bin bebekte bir olarak tespit ediliyor. Bu hastal\u0131kla do\u011fan ki\u015filerin hayatlar\u0131 boyunca do\u011fal proteinden k\u0131s\u0131tl\u0131 bir diyet uygulamalar\u0131 gerekiyor. Diyetin uygulanmamas\u0131 halinde bu bireylerde zek\u00e2 gerili\u011fi ba\u015fta olmak \u00fczere \u00e7e\u015fitli n\u00f6rolojik hasarlar g\u00f6r\u00fclebiliyor. Dolay\u0131s\u0131yla, kal\u0131tsal metabolik hastal\u0131klarda, erken tan\u0131 ve beslenme tedavi planlamas\u0131 bireylerin sa\u011fl\u0131kl\u0131 bir ya\u015fam s\u00fcrmesi i\u00e7in kritik rol oynuyor.<\/p>\n\n\n\n

Multidisipliner bir yakla\u015f\u0131m ile bilimsel temele dayal\u0131 ve bireysel ihtiya\u00e7lara yan\u0131t vererek geli\u015ftirilen \u2018Her Emek Hayat Demek Projesi\u2019 kapsam\u0131nda \u00c7ukurova \u00dcniversitesi T\u0131p Fak\u00fcltesi\u2019ne ba\u011f\u0131\u015flanan yeni nesil Metabolik Hastal\u0131k Tan\u0131 Cihaz\u0131 ve 10 bini a\u015fk\u0131n tan\u0131 kiti ile b\u00f6lgedeki hastalar i\u00e7in kritik bir ad\u0131m at\u0131ld\u0131. Di\u011fer yandan kal\u0131tsal metabolik hastalar ve yak\u0131nlar\u0131na y\u00f6nelik hayata ge\u00e7irilecek Uygulama Mutfa\u011f\u0131 ile d\u00fc\u015f\u00fck proteine dayal\u0131 \u00f6zel beslenme s\u00fcre\u00e7lerinin desteklenmesi hedeflendi. Ayr\u0131ca, PKU Aile Derne\u011fi<\/strong> i\u015f birli\u011fiyle depremden etkilenen 3 ilde kal\u0131tsal metabolik hastalar i\u00e7in kapsaml\u0131 bilgilendirme seminerleri d\u00fczenlendi.<\/p>\n\n\n

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Nutricia T\u00fcrkiye Uzman Beslenme Direkt\u00f6r\u00fc Cenk Kurt<\/strong> projeye ili\u015fkin \u015fu de\u011ferlendirmede bulundu: \u201cNutricia T\u00fcrkiye olarak, kal\u0131tsal metabolik hastal\u0131\u011f\u0131 olan bireylerin ve yak\u0131nlar\u0131n\u0131n hayatlar\u0131na s\u00fcrd\u00fcr\u00fclebilir de\u011fer katmay\u0131 \u00f6ncelikli amac\u0131m\u0131z olarak g\u00f6r\u00fcyoruz. Bu kapsamda, daha \u00f6nce hayata ge\u00e7irdi\u011fimiz pek \u00e7ok fark\u0131ndal\u0131k kampanyas\u0131 ve projenin ard\u0131ndan, kal\u0131tsal metabolik hastal\u0131klarla ya\u015faman\u0131n, sadece bir g\u00fcn de\u011fil, bir \u00f6m\u00fcr s\u00fcren emek gerektirdi\u011finin bilinciyle, bu alandaki \u00e7al\u0131\u015fmalar\u0131m\u0131z\u0131 \u2018Her Emek Hayat Demek\u2019 \u00e7at\u0131s\u0131 alt\u0131nda birle\u015ftiriyoruz. Bu \u00e7at\u0131, yaln\u0131zca bir s\u00f6ylem de\u011fil; toplumun \u00e7o\u011funlu\u011fu taraf\u0131ndan h\u00e2l\u00e2 yeterince bilinmeyen PKU ve di\u011fer kal\u0131tsal metabolik hastal\u0131\u011f\u0131 olan bireylerin ya\u015fam kalitesine katk\u0131da bulunmak ad\u0131na att\u0131\u011f\u0131m\u0131z somut ad\u0131mlar\u0131n ortak ifadesidir.\u201d<\/p>\n\n\n\n

Bilimsel Destekle Erken Te\u015fhis ve Tedavi<\/strong><\/p>\n\n\n\n

Nutricia T\u00fcrkiye\u2019nin deste\u011fiyle, \u00c7ukurova \u00dcniversitesi T\u0131p Fak\u00fcltesi \u00c7ocuk Metabolizma ve Beslenme Bilim Dal\u0131\u2019na kazand\u0131r\u0131lan yeni nesil Metabolik Hastal\u0131k Tan\u0131 Cihaz\u0131 ve 10 bini a\u015fk\u0131n tan\u0131 kiti ile PKU ve di\u011fer kal\u0131tsal metabolik hastal\u0131klar\u0131n erken te\u015fhis ve tedavi s\u00fcre\u00e7leri g\u00fc\u00e7lendiriliyor. Bu tan\u0131 cihaz\u0131 ve kitler sayesinde yenido\u011fan taramas\u0131 ile tespit edilen PKU haricinde di\u011fer kal\u0131tsal metabolik hastal\u0131klar\u0131n da te\u015fhis edilmesi ve yeni vakalar\u0131n d\u00fczenli takibi ile hastalar\u0131n komplikasyon risklerini azaltarak daha etkin bir tedavi y\u00f6netimi sunulmas\u0131 hedefleniyor.<\/p>\n\n\n\n

Uygulama Mutfa\u011f\u0131 ile Beslenme Dan\u0131\u015fmanl\u0131\u011f\u0131<\/strong><\/p>\n\n\n\n

Nutricia T\u00fcrkiye, \u00c7ukurova \u00dcniversitesi Hastanesi\u2019nde hayata ge\u00e7irece\u011fi Uygulama Mutfa\u011f\u0131 ile PKU ve di\u011fer kal\u0131tsal metabolik hastal\u0131klar\u0131n tedavisinde temel ta\u015flardan biri olan d\u00fc\u015f\u00fck proteinli diyetin hastalar taraf\u0131ndan do\u011fru uygulanmas\u0131na destek olacak. Bu kapsamda b\u00f6lgenin ilk ve tek uygulama mutfa\u011f\u0131nda hasta ve yak\u0131nlar\u0131na \u00f6zel kal\u0131tsal metabolik hastal\u0131klara \u00f6zg\u00fc beslenme programlar\u0131 uygulamal\u0131 olarak anlat\u0131lacak, bu sayede ise tat ve \u00e7e\u015fitlilik a\u00e7\u0131s\u0131ndan kar\u015f\u0131la\u015f\u0131lan zorluklar i\u00e7in alternatif \u00e7\u00f6z\u00fcmler sunulacak.<\/p>\n\n\n\n

Kal\u0131tsal metabolik hastal\u0131klar\u0131n tan\u0131s\u0131nda ve ya\u015fam boyu tedavi s\u00fcrecinde uzun soluklu multidisipliner bir yakla\u015f\u0131m\u0131n \u00f6nemine dikkat \u00e7eken \u00c7ukurova \u00dcniversitesi T\u0131p Fak\u00fcltesi \u00c7ocuk Metabolizma ve Beslenme Bilim Dal\u0131 B\u00f6l\u00fcm Ba\u015fkan\u0131 Prof. Dr. Halise Neslihan \u00d6nenli Mungan<\/strong> ise \u015funlar\u0131 s\u00f6yledi: \u201cKal\u0131tsal metabolik hastal\u0131klar\u0131n y\u00f6netiminde tan\u0131 ve do\u011fru tedavi planlamas\u0131, bireylerin ya\u015fam kalitesini do\u011frudan etkileyen en kritik unsurlard\u0131r. Nutricia T\u00fcrkiye\u2019nin deste\u011fiyle \u00c7ukurova \u00dcniversitesi Hastanesi\u2019ne kazand\u0131r\u0131lacak yeni nesil Metabolik Hastal\u0131k Tan\u0131 Cihaz\u0131 ve Uygulama Mutfa\u011f\u0131 ile yaln\u0131zca tan\u0131 kapasitemizi art\u0131rmakla kalm\u0131yor, ayn\u0131 zamanda hastalar\u0131m\u0131z\u0131n ya\u015fam boyu s\u00fcrecek \u00f6zel beslenme ihtiya\u00e7lar\u0131n\u0131 da etkin \u015fekilde y\u00f6netmelerine destek olaca\u011f\u0131z. Multidisipliner bir yakla\u015f\u0131mla hayata ge\u00e7irilen bu model, G\u00fcneydo\u011fu ve Do\u011fu Anadolu b\u00f6lgelerinin kal\u0131tsal metabolik hastal\u0131klar alan\u0131nda merkez olarak say\u0131lan \u00c7ukurova \u00dcniversitesi Hastanesi\u2019nde erken tan\u0131 ve tedavi planlamada uzun vadeli bir altyap\u0131 kuruyor.\u201d<\/p>\n\n\n\n

Toplumsal Fark\u0131ndal\u0131k ve Dayan\u0131\u015fma<\/strong><\/p>\n\n\n\n

Nutricia T\u00fcrkiye, \u2018Her Emek Hayat Demek\u2019 projesi ile ayn\u0131 zamanda toplumsal fark\u0131ndal\u0131\u011f\u0131 art\u0131rmak i\u00e7in de \u00e7al\u0131\u015f\u0131yor. Bu do\u011frultuda PKU Aile Derne\u011fi<\/strong> i\u015f birli\u011fiyle Diyarbak\u0131r, Hatay ve Gaziantep\u2019te d\u00fczenlenen bilgilendirme seminerlerinde, afet durumlar\u0131nda kal\u0131tsal metabolik hastal\u0131klar\u0131n y\u00f6netimi, sosyal haklar ve beslenme s\u00fcre\u00e7leri ele al\u0131nd\u0131. Bu oturumlar sayesinde, kal\u0131tsal metabolik hastal\u0131klarla ya\u015fayan bireylerin ve ailelerin olas\u0131 kriz d\u00f6nemlerine haz\u0131rl\u0131klar\u0131n\u0131 ve tedavi bilincini g\u00fc\u00e7lendirmek ama\u00e7land\u0131.<\/p>\n\n\n\n

Afet ve acil durumlarda PKU ve di\u011fer kal\u0131tsal metabolik hastal\u0131klara sahip bireyler i\u00e7in bilgilendirme ve haz\u0131rl\u0131kl\u0131 olman\u0131n hayati de\u011ferine vurgu yapan PKU Aile Derne\u011fi ve Nadir Hastal\u0131klar Federasyonu Ba\u015fkan\u0131 Deniz Y\u0131lmaz Atakay<\/strong> ise \u015fu ifadeleri kulland\u0131: \u201cPKU ve di\u011fer kal\u0131tsal metabolik hastal\u0131klarla ya\u015fayan bireyler i\u00e7in ya\u015fam boyu diyetlerine uygun \u00f6zel beslenme, ne yaz\u0131k ki acil ve afet durumlar\u0131nda daha da hayati bir \u00f6neme sahip oluyor. Bu sebeple kal\u0131tsal metabolik hastal\u0131\u011fa sahip t\u00fcm bireylerin, \u00f6zellikle kriz durumlar\u0131nda ne yapmalar\u0131 gerekti\u011fini bilmesi, en az \u00f6zel besin ve ilaca eri\u015fim kadar b\u00fcy\u00fck \u00f6nem ta\u015f\u0131yor.  Biz de, \u2018\u2019Her Emek Hayat Demek\u2019\u2019  projesiyle e\u011fitim ve deneyim temelli bu seminerler sayesinde hem bilin\u00e7 olu\u015fturmay\u0131 hem de dayan\u0131\u015fma k\u00fclt\u00fcr\u00fcn\u00fc peki\u015ftirmeyi hedefledik.\u201d<\/p>\n\n\n\n

Gelece\u011fe Ta\u015f\u0131nan Her Emek Bir Hayat\u0131 Ye\u015fertiyor<\/strong><\/p>\n\n\n\n

Nutricia T\u00fcrkiye, \u201cHer Emek Hayat Demek\u201d diyerek \u00e7\u0131kt\u0131\u011f\u0131 bu yolculukta 6 \u015eubat Kahramanmara\u015f Depremlerinden etkilenen b\u00f6lgeyi \u00f6nceliklendirerek ba\u015flatt\u0131\u011f\u0131 projeler ile  kal\u0131tsal metabolik hastal\u0131\u011f\u0131 olan bireyler ve yak\u0131nlar\u0131 i\u00e7in farkl\u0131 ihtiya\u00e7lara \u00e7\u00f6z\u00fcm sunan multidisipliner bir yakla\u015f\u0131m geli\u015ftirerek hayatlar\u0131na dokunmay\u0131 hedefliyor.<\/p>\n","protected":false},"excerpt":{"rendered":"

Nutricia T\u00fcrkiye, kal\u0131tsal metabolik hastal\u0131klara dair fark\u0131ndal\u0131k olu\u015fturmak ve bu hastal\u0131klarla ya\u015fayan bireyleri desteklemek amac\u0131yla \u2018Her Emek Hayat Demek\u2019 projesini hayata ge\u00e7iriyor. Bu proje kapsam\u0131nda erken te\u015fhis ve tedavi planlama, beslenme dan\u0131\u015fmanl\u0131\u011f\u0131 ve bilin\u00e7lendirme \u00e7al\u0131\u015fmalar\u0131 ile kal\u0131tsal metabolik hastal\u0131\u011f\u0131 olan bireylerin hem sa\u011fl\u0131kl\u0131 geli\u015fimlerine katk\u0131 sa\u011flamak hem de sosyal ya\u015famlar\u0131nda fark yaratmak hedefleniyor.<\/p>\n","protected":false},"author":1,"featured_media":4221,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[48,3],"tags":[],"_links":{"self":[{"href":"https:\/\/pharmaworlddergi.com\/index.php?rest_route=\/wp\/v2\/posts\/4220"}],"collection":[{"href":"https:\/\/pharmaworlddergi.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/pharmaworlddergi.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/pharmaworlddergi.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/pharmaworlddergi.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=4220"}],"version-history":[{"count":1,"href":"https:\/\/pharmaworlddergi.com\/index.php?rest_route=\/wp\/v2\/posts\/4220\/revisions"}],"predecessor-version":[{"id":4224,"href":"https:\/\/pharmaworlddergi.com\/index.php?rest_route=\/wp\/v2\/posts\/4220\/revisions\/4224"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/pharmaworlddergi.com\/index.php?rest_route=\/wp\/v2\/media\/4221"}],"wp:attachment":[{"href":"https:\/\/pharmaworlddergi.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=4220"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/pharmaworlddergi.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=4220"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/pharmaworlddergi.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=4220"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}